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What is it? 

A complex hereditary eye condition with many variable outcomes. This condition causes cells in the light sensitive retina to degenerate. A variety of symptoms usually develop between the ages of 10 and 30.

Simulation image of how retinitis pigmentosa affects vision. The scene is restricted to a circle in the centre, with the remaining scene blacked out.
Simulation image of how retinitis pigmentosa affects vision. The scene is restricted to a circle in the centre, with the remaining scene blacked out.

  • Reduced vision or a narrowing field of vision. It can lead to significant vision loss or even blindness over time. 
  • Difficulty seeing at night or in poorly lit areas. 
  • A sensitivity to brightness and glare. 
  • Difficulty in judging steps, corners or other changes to peripheral vision.

If issues with or changes to vision occur, see an optometrist or ophthalmologist as soon as you can. Our orthoptists can help you to understand your condition and make the most of your vision. 

There is currently no treatment available for vision loss due to retinitis pigmentosa. There is a lot of research underway into gene therapy and stem cell technology. Our orthoptists can provide you with further information on clinical trials and can support you to make the most of the vision you have. Orthoptists can assist you to minimise glare, use the correct lighting and make sure any glasses you wear and magnifiers are up to date.

How it can affect your life

Retinitis pigmentosa can affect mobility, especially at night due to night blindness (nyctalopia). It can lead to issues with driving and make it difficult to see when there is significant glare. It can also affect your ability to perform near tasks such as study, work and leisure activities. 

Download a guide

Retinitis pigmentosa guide

Fact sheet summary to print or download. 

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